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Lesa Brackbill

Director of Advocacy
Lesa Brackbill is the Director of Advocacy for Patient Advocacy Strategies. She has ten years of experience in rare disease advocacy and successfully changed two Newborn Screening laws in Pennsylvania to increase access to timely diagnosis and treatment for babies with rare diseases. Lesa is passionate about strategic communication and effective advocacy. She and her family live in Hershey, Pennsylvania. Learn more about Lesa’s work here.
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Featured Articles

Why Newborn Screening Matters – The Difference Between a Diagnosis and a Future

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It Doesn’t Have to Be This Way

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Announcing A Brighter Blueprint 

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Recognizing Rare Disease Month Through Newborn Screening Advocacy

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MLD and DMD Added to the Federal RUSP: A Victory for Newborn Screening

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