Solutions

Understanding Patient Needs

Once we know what patients genuinely want, we can utilize those insights to create strategies that lead to solutions for patients and industry partners.

Solutions

Understanding Patient Needs

Understanding patient needs allows us to devise strategies for solutions benefiting both patients and industry partners.

Patient Advocacy & Engagement

Converting patient insights to actionable strategies for biopharma innovators .

Bespoke strategic frameworks – We architect advocacy programs through stakeholder mapping that treats patients as the starting point, not a checkbox. These frameworks ensure patient reality shapes the work from day one, providing patients with meaningful endpoints and de-risking biopharma assets

Integrated patient insights – By leveraging patient and caregiver insights, we capture critical perspectives that serve as design inputs for the entire organization and ensure protocol issues don’t turn into expensive amendments.

Patient journey mapping and disease landscape analysis – We identify the specific friction points where the current system fails rare disease families. We uncover the gaps in data and policy to create opportunities for meaningful improvement that reflects how patients actually live.

Omnichannel advocacy – We mobilize communities through the channels they actually trust. We meet patients where they are to drive participation in initiatives that align with both company objectives and community urgency.

Patient-centric data insights – Trust is not soft; it is infrastructure. We provide actionable reports and strategic recommendations that use patient reality to improve company outcomes, de-risking assets and improving clinical trial recruitment.

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Clinical Trial Recruitment & Site Support

Reducing the inherent barriers to enrolling participants in a clinical trial.

Optimized Study websites

Customizable platforms that respect the patient’s time. These include intuitive prescreening tools and site locator designed around the reality of complex lives.

High-Conversion Prescreening Tools

Improving clinical trial recruitment by reducing the friction of enrollment, saving time for both prospective participants and pharma teams.

Referral management portals

Securely disseminating contact info to clinical trial sites to improve clinical trial recruitment speed—because in rare disease urgency is a constraint, not an emotion.

Authentic patient storytelling

High-quality video production highlighting lived experience, not abstractions. We use authentic voices to build the trust that is required before enrollment can begin.

Customized site support resource toolkits

Practical materials that reduce site burden and acknowledge the operational complexity of rare disease trials.

Patient advocacy group (PAG) partnerships

Establish authentic trust early in clinical development. We amplify company messaging through strategic partnerships that value the authority of patient advocacy groups.

Clinical trial readiness audit

Proactively identifying clinical trial recruitment and retention risks to de-risk assets. We surface silent deal-breakers before they become enrollment failures.

Stakeholder Engagement

Advancing a company’s policy agenda through disease stakeholder engagement.

Nonprofit development & coalition building – We intervene where development systems fail by creating advocacy infrastructure where none exists. We work with partners willing to do the work, not just say the words.

Health literacy & education – By leveraging patient and caregiver insights, we capture critical perspectives that serve as design inputs for the entire organization and ensure protocol issues don’t turn into expensive amendments.

Social listening & insights audits – Synthesizing patient insights to understand the unmet needs that standard models miss.

Strategic event execution – Managing high-impact attendance at key events to ensure lived experience is represented in every critical conversation.

Health Policy

Helping improve access and equity for rare disease patients and families.

State & federal newborn screening (NBS) strategy

Navigating the system to identify patients sooner. We empower partners to optimize resources because delays have real consequences for people waiting on treatment.

Patient access & reimbursement policy

Ensuring impact doesn't stop at approval. We advise on improving access by specific state, recognizing that approval is not the finish line for patients.

Grassroots stakeholder activation

Connecting fragmented communities to improve clinical trial recruitment and policy outcomes through meaningful, early engagement.

Advancing health equity

Collaborating with underserved communities to ensure health equity isn't just a phrase, but a design requirement.

Policy analysis & impact assessment

Assessing the business impact of policy implications through a lens of patient reality.

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Build stories through videos

Capture the power of the patient voice by using video to authentically tell patient stories for clinical trial recruitment.

View our work

From web design and development to recruitment and retention materials, find examples of our work below.