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Blog Posts

Category: Patient Advocacy

Why Newborn Screening Matters - The Difference Between a Diagnosis and a Future

Why Newborn Screening Matters – The Difference Between a Diagnosis and a Future

Learn why newborn screening is one of the most important public health tools for rare disease diagnosis, early intervention, health equity, and improved patient outcomes....
Published August 21, 2026
My Voice Matters - Living with Duchenne Muscular Dystrophy

My Voice Matters: Living with Duchenne Muscular Dystrophy  

Devin Argall shares his experience living with Duchenne muscular dystrophy and how small assumptions can impact identity, inclusion, and respect....
Published August 12, 2026
How to Measure the Impact of Advocacy Engagement

How to Measure the Impact of Advocacy Engagement

Learn how to measure the impact of advocacy engagement using meaningful metrics that demonstrate influence on recruitment, retention, patient experience, trial readiness, and community trust....
Published August 7, 2026
Recruitment Creates Awareness - Patient Stories Create Confidence

Recruitment Creates Awareness – Patient Stories Create Confidence

Learn how patient story videos build trust, improve engagement, and help sponsors create stronger clinical trial recruitment strategies through authentic patient experiences....
Published August 4, 2026
What Meaningful Patient Advocacy Partnerships Look Like

What Meaningful Patient Advocacy Partnerships Look Like

The Strongest Advocacy Partnerships Begin Before There Is a Project Many biopharma companies first engage patient advocacy organizations when a specific need arises. A clinical trial needs recruitment support. A...

Published July 28, 2026
Trust - The Most Valuable Currency in Patient Advocacy and Biopharma Partnerships

Trust: The Most Valuable Currency in Patient Advocacy and Biopharma Partnerships

Trust Is Built Long Before It Is Needed Trust is often described as a cornerstone of healthcare. In patient advocacy and biopharma partnerships, it is something even more fundamental. It...

Published July 27, 2026
Beyond Sponsorships - Building Effective Advocacy Partnerships

Beyond Sponsorships – Building Effective Advocacy Partnerships

The Strongest Advocacy Partnerships Are Built on Trust, Not Funding Many sponsors recognize the importance of working with patient advocacy organizations. Yet too often, these relationships begin and end with...

Published July 18, 2026
Creating Win-Win Partnerships Between Sponsors and Advocacy Groups

Creating Win-Win Partnerships Between Sponsors and Advocacy Groups

The Best Partnerships Create Value for Everyone Involved The strongest patient advocacy partnerships are not built around what one organization needs from another. They are built around what both organizations...

Published July 12, 2026
Advocacy Mapping 101 - Identifying the Right Partners for Your Clinical Program

Advocacy Mapping 101 – Identifying the Right Partners for Your Clinical Program

The Right Advocacy Partner Is Not Always the Most Visible One When sponsors begin planning patient engagement activities, one of the first questions they often ask is, “Which advocacy organizations...

Published July 8, 2026
How Sponsors Can Build Stronger Advocacy Partnerships

How Sponsors Can Build Stronger Advocacy Partnerships

The Most Valuable Advocacy Partnerships Are Built Before They Are Needed Many sponsors begin engaging patient advocacy organizations when a specific need emerges. A clinical trial requires recruitment support. A...

Published June 21, 2026
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