Patients carry the diagnosis. Caregivers often carry the burden. Clinical trials often focus on reducing burden for patients. But in many therapeutic areas, especially rare disease, pediatric, neurology, and complex...
Patients Trust People Who Share Their Experiences The challenge with many recruitment campaigns is not simply reaching patients. It is reaching patients through voices they trust. Today, thousands of patients...
The Most Effective Recruitment Strategy May Not Start With Recruitment Patient advocacy organizations are often viewed as recruitment partners. Sponsors may engage them to help raise awareness, distribute study information,...
Rare Disease Communities Aren’t Smaller Versions of Larger Patient Populations Many organizations approach rare disease engagement using the same strategies they use for more common conditions. The assumption is often...
