Rare Disease Communities Aren’t Smaller Versions of Larger Patient Populations Many organizations approach rare disease engagement using the same strategies they use for more common conditions. The assumption is often...
The Best Partnerships Create Value for Everyone Involved The strongest patient advocacy partnerships are not built around what one organization needs from another. They are built around what both organizations...
Recruitment Challenges Are Often Created Months Before Enrollment Begins When clinical trial recruitment falls behind plan, sponsors often respond by increasing recruitment activity. Additional outreach is launched. Awareness campaigns are...
Patient Engagement Does Not End With Understanding Patient Needs When organizations think about patient engagement, the conversation often focuses on insights. What are patients experiencing? What barriers are they facing?...
The Right Advocacy Partner Is Not Always the Most Visible One When sponsors begin planning patient engagement activities, one of the first questions they often ask is, “Which advocacy organizations...
Most Clinical Trial Delays Are Visible Before the Study Begins Clinical trial delays are often treated as unexpected operational challenges. Enrollment falls behind plan. Site performance varies. Retention becomes more...
The Most Effective Patient Engagement Strategies Begin With Mindset, Not Tactics Many organizations talk about patient engagement. Fewer organizations truly embrace it. Patient engagement is often discussed in the context...
Recruitment Plans Fail When Sponsors Do Not Understand the Patient Landscape Many clinical trial challenges begin before recruitment starts. Sponsors may finalize protocols, select vendors, activate sites, develop recruitment materials,...
What If Your Recruitment Challenges Were Created Months Before Recruitment Ever Began? When enrollment falls behind projections, sponsors often increase recruitment activity. Additional outreach campaigns are launched. New recruitment vendors...
