In policy meetings and committee rooms across the country, newborn screening conditions are regularly scored, debated, and weighed. Leaders evaluate analytical validity, treatment efficacy, and system capacity. But every so...
Patients carry the diagnosis. Caregivers often carry the burden. Clinical trials often focus on reducing burden for patients. But in many therapeutic areas, especially rare disease, pediatric, neurology, and complex...
Patients Trust People Who Share Their Experiences The challenge with many recruitment campaigns is not simply reaching patients. It is reaching patients through voices they trust. Today, thousands of patients...
The Strongest Advocacy Partnerships Begin Before There Is a Project Many biopharma companies first engage patient advocacy organizations when a specific need arises. A clinical trial needs recruitment support. A...
Trust Is Built Long Before It Is Needed Trust is often described as a cornerstone of healthcare. In patient advocacy and biopharma partnerships, it is something even more fundamental. It...
The Most Effective Recruitment Strategy May Not Start With Recruitment Patient advocacy organizations are often viewed as recruitment partners. Sponsors may engage them to help raise awareness, distribute study information,...
