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Tag: Rare Disease Advocacy

A man and woman pose with their baby in front of a beach. The sun is setting in the background

Recognizing Rare Disease Month Through Newborn Screening Advocacy

A Rare Diagnosis My husband and I both agree that Friday, February 13, 2015, was the worst day of our lives.  We had endured a six-week diagnostic odyssey for our...

Published February 18, 2026
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