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Tag: Patient Voice

My Voice Matters - Living with Duchenne Muscular Dystrophy

My Voice Matters: Living with Duchenne Muscular Dystrophy  

Devin Argall shares his experience living with Duchenne muscular dystrophy and how small assumptions can impact identity, inclusion, and respect....
Published August 12, 2026
Why Authentic Patient Engagement is a Fundamental Belief Not Merely a Transaction

Why Authentic Patient Engagement is a Fundamental Belief, Not Merely a Transaction

The Most Effective Patient Engagement Strategies Begin With Mindset, Not Tactics Many organizations talk about patient engagement. Fewer organizations truly embrace it. Patient engagement is often discussed in the context...

Published July 6, 2026
The Crucial Role of Patient Engagement Throughout the Pharmaceutical Product Lifecycle

The Crucial Role of Patient Engagement Throughout the Pharmaceutical Product Lifecycle

The Most Successful Products Are Built With Patients, Not Just For Patients Patient engagement is often discussed as a component of clinical trial recruitment or advocacy collaboration. In reality, its...

Published June 24, 2026
A young man who lives with Duchenne muscular dystrophy sits in a wheel chair. He is wearing blue pants and a blue t-shirt.

Living with a Rare Disease: When Injuries Occur

Living with a rare disease is a challenge. Experiencing a life changing injury is a challenge. Experiencing both was life-altering. When One Diagnosis Becomes Two Life-Changing Challenges I was walking...

Published June 11, 2026
Enhancing Clinical Trial Success Through Proactive Patient Advocacy and Engagement

Enhancing Clinical Trial Success Through Proactive Patient Advocacy and Engagement 

The Strongest Clinical Trials Are Built With Patients, Not Just For Them Clinical trials are the backbone of life science treatments, providing the data needed to bring new & innovative...

Published June 1, 2026
it doesn't have to be this way: paving the potholes in advocacy

It Doesn’t Have to Be This Way

Paving the Potholes in Advocacy We’ve all been there. You’re navigating a complex system—whether it’s healthcare, education, or government—and you hit a wall. You find yourself asking: That frustration is...

Published April 6, 2026
Cover of the book A Brighter Blueprint

Announcing A Brighter Blueprint 

I Wrote a Book.  Actually, I have now written two—a fact that still surprises me daily.  If you had told me twelve years ago that I would be an author,...

Published February 24, 2026
Listening matters - especially in health policy

Listening Matters – Especially in Health Policy

“Advocacy is key to the effective functioning of a democratic society and a free market economy.”1 Listening to Understand  One of our core values at Patient Advocacy Strategies is listening...

Published March 7, 2025
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