Patients carry the diagnosis. Caregivers often carry the burden. Clinical trials often focus on reducing burden for patients. But in many therapeutic areas, especially rare disease, pediatric, neurology, and complex...
If Patients Cannot Understand a Study, They Cannot Meaningfully Consider Participating Sponsors invest significant time and resources developing clinical trial materials. Protocols are translated into brochures. Recruitment campaigns are launched....
The Most Effective Patient Engagement Strategies Begin With Mindset, Not Tactics Many organizations talk about patient engagement. Fewer organizations truly embrace it. Patient engagement is often discussed in the context...
The Most Successful Products Are Built With Patients, Not Just For Patients Patient engagement is often discussed as a component of clinical trial recruitment or advocacy collaboration. In reality, its...
Living with a rare disease is a challenge. Experiencing a life changing injury is a challenge. Experiencing both was life-altering. When One Diagnosis Becomes Two Life-Changing Challenges I was walking...
Patient Interest Alone Does Not Drive Participation Many sponsors assume that awareness is the primary barrier to clinical trial participation. If more patients know about a study, enrollment will improve....
