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Blog Posts

Tag: Patient Advocacy

The Cost of Convenience - Why Administrative Hurdles Should Never Block Newborn Screening

The Cost of Convenience: Why Administrative Hurdles Should Never Block Newborn Screening

In policy meetings and committee rooms across the country, newborn screening conditions are regularly scored, debated, and weighed. Leaders evaluate analytical validity, treatment efficacy, and system capacity. But every so...

Published September 2, 2026
Why Newborn Screening Matters - The Difference Between a Diagnosis and a Future

Why Newborn Screening Matters – The Difference Between a Diagnosis and a Future

Learn why newborn screening is one of the most important public health tools for rare disease diagnosis, early intervention, health equity, and improved patient outcomes....
Published August 21, 2026
How to Build Community Trust Before Recruitment Begins

How to Build Community Trust Before Recruitment Begins

Learn how sponsors can build trust with patient communities before recruitment begins and why early engagement strengthens long-term recruitment success....
Published August 20, 2026
Clinical Trial Enrollment Isn't the Problem - Access Is

Clinical Trial Enrollment Isn’t the Problem – Access Is

Patients are often willing to participate in clinical trials but face barriers related to access, travel, costs, and eligibility. Learn how sponsors can improve clinical trial enrollment by addressing participation...
Published August 20, 2026
My Voice Matters - Living with Duchenne Muscular Dystrophy

My Voice Matters: Living with Duchenne Muscular Dystrophy  

Devin Argall shares his experience living with Duchenne muscular dystrophy and how small assumptions can impact identity, inclusion, and respect....
Published August 12, 2026
The Role of Patient Storytelling in Clinical Development

The Role of Patient Storytelling in Clinical Development

Learn how patient storytelling can improve clinical development by revealing patient priorities, reducing trial barriers, strengthening advocacy engagement, and supporting more patient-centered study design....
Published August 12, 2026
How to Measure the Impact of Advocacy Engagement

How to Measure the Impact of Advocacy Engagement

Learn how to measure the impact of advocacy engagement using meaningful metrics that demonstrate influence on recruitment, retention, patient experience, trial readiness, and community trust....
Published August 7, 2026
Recruitment Creates Awareness - Patient Stories Create Confidence

Recruitment Creates Awareness – Patient Stories Create Confidence

Learn how patient story videos build trust, improve engagement, and help sponsors create stronger clinical trial recruitment strategies through authentic patient experiences....
Published August 4, 2026
Using AI for Clinical Trial Recruitment - Technology Is Powerful but Patient Understanding Still Wins

Using AI for Clinical Trial Recruitment: Technology Is Powerful but Patient Understanding Still Wins

Discover how AI is transforming clinical trial recruitment and why combining artificial intelligence with patient engagement may deliver better enrollment outcomes....
Published July 31, 2026
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