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Tag: Health Equity

Why Newborn Screening Matters - The Difference Between a Diagnosis and a Future

Why Newborn Screening Matters – The Difference Between a Diagnosis and a Future

Learn why newborn screening is one of the most important public health tools for rare disease diagnosis, early intervention, health equity, and improved patient outcomes....
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Published August 21, 2026
My Voice Matters - Living with Duchenne Muscular Dystrophy

My Voice Matters: Living with Duchenne Muscular Dystrophy  

Devin Argall shares his experience living with Duchenne muscular dystrophy and how small assumptions can impact identity, inclusion, and respect....
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Published August 12, 2026
Why Health Policy Belongs in Patient Engagement Strategy

Why Health Policy Belongs in Patient Engagement Strategy

Patient Engagement Does Not End With Understanding Patient Needs When organizations think about patient engagement, the conversation often focuses on insights. What are patients experiencing? What barriers are they facing?...

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Published July 9, 2026
A young man sitting in a wheel chair. He is wearing a black t-shirt that reads "You break it, you own it."

A Plea for Safe and Accessible Air Travel 

Living with Duchenne and the Importance of Clinical Trials I am 24 years old, living with Duchenne Muscular Dystrophy, and advocating for accessible air travel. Duchenne is a muscle-wasting disease...

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Published May 22, 2026
Listening matters - especially in health policy

Listening Matters – Especially in Health Policy

“Advocacy is key to the effective functioning of a democratic society and a free market economy.”1 Listening to Understand  One of our core values at Patient Advocacy Strategies is listening...

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Published March 7, 2025
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