The Strongest Advocacy Partnerships Are Built on Trust, Not Funding Many sponsors recognize the importance of working with patient advocacy organizations. Yet too often, these relationships begin and end with...
Rare Disease Recruitment Is Not a Volume Problem Many clinical trial recruitment strategies are built around reach. More awareness. More advertising. More referrals. More outreach. In common disease states, increasing...
The Most Valuable Advocacy Partnerships Are Built Before They Are Needed Many sponsors begin engaging patient advocacy organizations when a specific need emerges. A clinical trial requires recruitment support. A...
Patient Interest Alone Does Not Drive Participation Many sponsors assume that awareness is the primary barrier to clinical trial participation. If more patients know about a study, enrollment will improve....
Awareness Is the Beginning of Recruitment, Not the Goal What if recruitment challenges are not caused by a lack of awareness at all? When enrollment falls behind plan, many sponsors...
A Rare Diagnosis My husband and I both agree that Friday, February 13, 2015, was the worst day of our lives. We had endured a six-week diagnostic odyssey for our...
