The Strongest Advocacy Partnerships Begin Before There Is a Project Many biopharma companies first engage patient advocacy organizations when a specific need arises. A clinical trial needs recruitment support. A...
Trust Is Built Long Before It Is Needed Trust is often described as a cornerstone of healthcare. In patient advocacy and biopharma partnerships, it is something even more fundamental. It...
The Strongest Advocacy Partnerships Are Built on Trust, Not Funding Many sponsors recognize the importance of working with patient advocacy organizations. Yet too often, these relationships begin and end with...
Rare Disease Recruitment Is Not a Volume Problem Many clinical trial recruitment strategies are built around reach. More awareness. More advertising. More referrals. More outreach. In common disease states, increasing...
Rare Disease Communities Aren’t Smaller Versions of Larger Patient Populations Many organizations approach rare disease engagement using the same strategies they use for more common conditions. The assumption is often...
The Best Partnerships Create Value for Everyone Involved The strongest patient advocacy partnerships are not built around what one organization needs from another. They are built around what both organizations...
The Right Advocacy Partner Is Not Always the Most Visible One When sponsors begin planning patient engagement activities, one of the first questions they often ask is, “Which advocacy organizations...
