


Living with a rare disease is a challenge. Experiencing a life changing injury is a challenge. Experiencing both was life-altering. When One Diagnosis Becomes Two Life-Changing Challenges I was walking...

Living with Duchenne and the Importance of Clinical Trials I am 24 years old, living with Duchenne Muscular Dystrophy, and advocating for accessible air travel. Duchenne is a muscle-wasting disease...